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A member asked:
Having been diagnosed with ehlers danlos just recently, (myself, my 2 disabled sons, and my mother), i am still trying to learn about it and understand the depth of its impact on my family and all of our symptoms/conditions. is it possible that it cause
3 doctors weighed in across 2 answers
Can cause a lot: A wonderful site for information is the EDNF. Specifically you can review all of the information presented at the last annual conference at this site. http://www.ednf.org/2014-annual-conference After you have had a chance to become acquainted with this, please return and ask all the questions you can think of. EDS is a very complex condition with a wide range of challenges.
Answered 9/23/2014
3.7k views
I agree with Dr. F.: It would be helpful for all affected family members to have clinical genetic evaluations & genetic testing to determine the type of EDS. The Ehlers-Danlos syndromes are a group of inheritable connective tissue disorders sharing common features of hyper-extensible skin, hyper-mobile joints & fragile tissue . A specific diagnosis will yield answers about other signs & symptoms as well as prognosis.
Answered 9/23/2014
3.7k views
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