A member asked:

Is crest syndrome with high centromere b antibody considered a rare disorder with rheumatologists having only a few such patients? should i seek out a scleroderma specialty center for regular care?

6 doctors weighed in across 3 answers

It's your call: I'm glad that you got your diagnosis. It's your call whether to seek a sub-subspecialist. Often your best move is to become scientifically literate and read the real journal articles having to do with your disease. The key decision in your management will probably be whether, when and how to manage any pulmonary arterial hypertension. See if you have someone locally who you like & trust.

Answered 3/14/2018

4.9k views

Thank
Dr. Darrell Herrington answered

Specializes in Family Medicine

No: Any rheumatologist is well-versed in this disorder, and you should have one there in amarillo or in lubbock.

Answered 8/30/2013

4.9k views

Thank

Yes: Most rheumatologist will have only a few patients with crest syndrome, if any. If travel is difficult, a specialty center may be able to work with your local rheumatologist to provide the best possible care with a minimum of travel.

Answered 8/27/2013

4.9k views

Thank

Related Questions