I have recently been diagnosed with foveal vitelliform dystrophy by my opthamologist. is anyone on this site aware of research studies in the ne usa?

Foveal Dystrophy: Fvd is due to a build up of a fatty yellow pigment (lipofuscin) in cells underlying the macula. Over time, the abnormal accumulation of this substance can damage these cells which are important for clear central vision. Dr. Joanna seddon and dr. Joan miller are the best in the ne in managing fvd at harvard medical school, mass eye and ear; 617-573-3700. Best regards, slc.

Link to article: This article, although technical, gives a good overview. Here is the link. You might contact the authors for a referral. I hope this is helpful. http://www.ncbi.nlm.nih.gov/books/nbk1167/.