Many places: Start with the nih which conducts research in such areas and funds research throughout the usa for unusual ailments. Most medical centers have experts in very narrow fields of medicine. You can find information on many unusual diseases by contacting national charitable agencies specializing in such diseases.
Answered 7/20/2013
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A doctor has provided 1 answer
A doctor has provided 1 answer
A doctor has provided 1 answer
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2 doctors weighed in across 2 answers
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