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How does duchenne muscular dystrophy affect the family and kids socialy and economically?

3 doctor answers4 doctors weighed in
Dr. Ahmad M Hadied
Orthopedic Surgery 50 years experience
Guillaume Duchenne : Duchenne muscular dystrophy is disease of muscle that weaken the musculoskeletal system and hamper locomotion. Muscular dystrophies are characterized by progressive skeletal muscle weakness, defects in muscle proteins, and the death of muscle cells and tissue. Some of it inherted by six linked gene.These diseases predominately affect males, very disabling.
Dr. George Gantsoudes
Pediatric Orthopedic Surgery 18 years experience
A fair amount: A child with dmd will need many doctors visits and likely some surgeries in their lives. Going to a children's hospital or a multidisciplinary clinic can help lessen the burden. Also, they can point you in the direction of counselors who can help you deal with upcoming challenges.
Dr. Johanna Fricke
Pediatrics - Developmental and Behavioral 51 years experience
As parents cope with: Their son's dmd, each grieves at his/her own rate. X-linked mutations in the dystrophin gene cause 2/3 of cases of dmd; moms may know they didn't cause the mutation, yet still feel guity. Dmd requires family re-organization to fit the child's changing medical, educational & emotional needs. Like flight attendants advise, put your own oxygen mask on first before you try to help your child.

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Last updated Jun 25, 2016
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