What do i need to talk to my doctor about as a parent of a disabled child?

Everything: Parents of a disabled child are going to know way more about medicine than they should. They are also going to have a myriad of questions and concerns about things that may never even occur to the doctor to bring up, but might be extremely important, like logistics, mainstreaming in school, iep's, social issues, behavior training, potty training, and much more. Nothing, nothing, is off limits.

Lots: 1) get a clear picture of the disability -- keep pressing until you understand what is going on. 2) learn what rehab options there are 3) discuss how you can manage your own stress. Often you will need to seek out other sources than the child's treating physician for this information but you will be best off and so will your child if you get it. Specific, detailed, understandable!

Your feelings: It is important to talk to your doctor about your feelings about having a child who is disabled and how it is affecting your family. In addition your should talk about how best to get services for your child.