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A 46-year-old member asked:

How much is duration of life for patients newly diagnosed with leukodystrophy?

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Dr. Johanna Fricke
Developmental and Behavioral Pediatrics 50 years experience
Depends on type/form: For example, infantile metachromatic leukodystrophy onset is by age 2, with 50-60% morbidity by 5. Juvenile onset between age 4-10 (20-30% of cases) has slower progression. There are 2 adult-onset forms, one starts with neurologic/motor problems, the other with behavioral challenges. Please ask the attending specialist.

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Last updated Oct 3, 2016

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