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A member asked:
Where can i get information on some very rare genetic disorders?
A doctor has provided 1 answer
The web & your doc: Three good sources are the centers for disease control website for genomic medicine (http://www.Cdc.Gov/genomics/), the national library of medicine's genetics home reference website (http://ghr.Nlm.Nih.Gov/), and the genetic alliance website (http://www.Geneticalliance.Org/). If you worry about yourself or a family member, the best place to start is with your personal physician.
Answered 12/9/2013
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