What is the most well-known treatment for facioscapulohumeral muscular dystrophy?

Medical Home: Children with severe muscle disease need a team approach that includes orthopedics, pulmonary, neurology, physiotherapy, gi, gu, and perhaps cardiology. These experts need to be coordinated through a team leader - usually a pediatrician who provides the medical home.

OT: For training in activities of daily living and instrumental activities of daily living. No fda approved drug exists for therapy specifically for this disorder though there are compounds under investigation.