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A 39-year-old member asked:

what to do if i'm 18 and have type 1 osteogenesis imperfecta. i love the color of my eyes because its so rare but just how rare is it?

1 doctor answer1 doctor weighed in
Dr. Ed Friedlander
Pathology 44 years experience
Lucky you: You're fortunate not so much because you have OI, but that you've found a "plus" in what makes you different. The estimates I can find is that there are about 20,000 folks like yourself in the US.

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Last updated Jun 8, 2014
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