What to do if i have a baby diagnosed with a ccam (congenital cystic adenomatoid malformation)?

See a Lung Doctor: Assuming the CCAM was found on a chest X-ray, it is important to see a Pulmonologist (lung doctor) and obtain a referral to a Pediatric Surgeon if necessary. They can collaborate to ensure the best possible long term lung function. UCSF and Stanford will both have good options for you.

Pediatric surgeon: most neonates with CCAM are diagnosed prenatally by ultrasound. a referral is usually made prenatally to a pediatric surgeon so the parents can investigate what is in store for their unborn child. studies will be required after the baby is born such as a CT scan of chest. in many cases the surgery can be delayed till the infant is between 6 and 12 months of age.

Baby: Need to be evaluated by a pediatric surgeon, pulmonologist and a high risk OB/GYN to discuss how to proceed further.