A member asked:

Am going to start right away with this: long tongue, tall and thin, double jointed, flexible, heal poorly. does this sound like ehlers-danlos syndrome?

6 doctors weighed in across 2 answers
Dr. Thomas Namey answered

Specializes in Rheumatology

Maybe! Marfans! Not: Could be that or marfan's or hypermobilty. Genetic testing will be definitive.

Answered 11/26/2013

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Marfan's Syndrome ?: Your description is a little more like marfan's both are genetic syndromes or you could just be tall and unusually limber. Genetic testing would tell you for sure i recommend this as each have their own medical issues that need careful monitoring.

Answered 5/4/2013

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