Ehlers Danlos: Ehler danlos foundation."ednf is thrilled that researchmatch is creating a sub-registry for ehlers-danlos syndrome. This will help facilitate much needed research that will positively affect people living with eds, as well as their friends and families, and that's a big part of ednf's mission. Thank you, researchmatch." — sandy chack, board of directors chair, ehlers-danlos national foundation. To get involved and to find out about the latest research, please contact kathy edson-vanderbilt university, where i went to medical school.Her phone number is615–343–2571. Best wishes for a blessed holiday season.
Answered 12/15/2013
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