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A member asked:
I hav pos myopathy &was just dignosed with stiff persons syndrome&taking ivig tm's are these tied 2gether? don't know what myopathy is yet either
2 doctors weighed in across 2 answers
muscle disease: Myopathy merely means abnormal muscle, and typically presents with weakness over shoulders and hips. Stiff person's syndrome causes muscular rigidity and spasms, but is not a myopathy but rather an autoimmune disorder affecting glutamic acid decarboxylase, and amphiphysin. Ivig is likely your best approach. Likely you have but one disorder.
Answered 10/29/2013
4.8k views
Discuss with MD: Very challenging scenario, the stiff persons syndrome is an autoimmune issue and ivig is an appropriate therapy for the anti glutamic acid decarboxlase antibodies. If the myopathy is an inflammatory myopathy the ivig may help. Your neurologist may do electromyogram and nerve conduction studies to help sort things out . A biopsy of a small amount of muscle tissue may also be part of the work up.
Answered 10/28/2013
4.8k views
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