Question 1

what is the life expectancy for people with neurofibromatosis type 1?

Accepted Answer

Hugely variable: No two cases are alike, and the illness is modified by other genes. One of the board members of one of my medical schools was a successful and popular physician who had the illness. Best wishes.

Question 2

what do you suggest if my son has neurofibromatosis type 1 and hi is only 2years old what can i expect ?

Accepted Answer

See genetics special: Since you are on the internet at this site, I'm sure you have already educated yourself about the risks of learning disabilities, vision issues, cancer, high blood pressure, seizures, skin tumors etc. The complications can be very diverse, and many children have limited issues. A genetics specialist would be better suited to discuss this with you, and direct you to the appropriate specialist

Question 3

would neurofibromatosis type 1 disqualify me from donating sperm to a sperm bank?

Accepted Answer

Yes: You will be disqualified as a sperm donor, during screening process. Sperm bank will not accept people with any  genetic disorders.   Nf-1 is a genetic disorder involving chromosome 17, formerly known as ' von recklinghausen disease '.

Question 4

can neurofibromatosis type 1 progress to neurofibromatosis type 2?

Accepted Answer

No: Two distinct diseases caused by different genetics.

Question 5

my son (1 year and 3 months old) has a neurofibromatosis type 1 (c4537t r1513x) . are there any restrictions for vacciantion for his condition?

Accepted Answer

None: There are absolutely no restrictions for his shots and you may even want to talk to his pediatrician about a couple of extra ones we don't usually give because of him having a chronic health condition.  So certainly none less, maybe 1-2 more.

Question 6

i have a significant case of neurofibromatosis type 1. there are some issues at my job that are beyond stressful. can stress exacerbate nf1?

Accepted Answer

Stress reduction: Try yoga &amp; meditation- google &amp; choose the ones you prefer.
Try to ignore the ignorant ones!
NF1  may not exacerbate due to stress.

Question 7

what is the life expectancy for someone with neurofibromatosis type 2?

Accepted Answer

Shortened: Life expectancy for people with NF-2 is generally shortened compared to non-affected and NF-1 affected people, but it is also highly dependent on a number of potential conditions, and available treatments.  I've added a link that is more comprehensive, and I hope it helps.


http://www.ctf.org/pdf/brochures/NF2_Info_for_Patients_Families.pdf

Question 8

please tell me the life expectancy for someone with neurofibromatosis type 2?

Accepted Answer

Much better: In past the past the average life span of individuals with NF2 was  shortened compared to people without NF2.  Improvements in diagnosis and management have changed this statistic.I would discuss it with your neurologist since she/he knows the specifics of your condition

Question 9

i have chiari and neurofibromatosis both type 1, with a neurofibroma around c7. my headaches are daily and pretty intense. is surgery a good option?

Accepted Answer

If true chiari pain: Typical headache in chiari i patients is occipital pain with coughing, sneezing, lifting, etc.).Have to differentiate between primary headaches such as migraines or tension pain, and headaches due to this typical posterior fossa syndrome.“chiari” headaches may coexist with migraine headaches, complicating treatment.Frequent coexistence of musculoskeletal neck pain.Need good neurologist to sort out.

Question 10

my sister has neurofibromatosis type 2. she only has the cafe spots on her body. will i develop it too? is there a chance she will get a tumor? :(

Accepted Answer

Neurofibromatosis: Are you certain your sister has NF2?  What about NF1?  The reason for asking is that cafe au lait spots are not used to diagnose NF2.  What about your parents?

Many cases are spontaneous, and you may never develop symptoms of NF.  It depends on which type we are talking about and what other family members have it.

Once you are sure of the diagnosis then your questions may be answered.

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Doctor answers about:

Neurofibromatosis type 1 life expectancy

A member asked:

What is the life expectancy for people with neurofibromatosis type 1?

A member asked:

What do you suggest if my son has neurofibromatosis type 1 and hi is only 2years old what can i expect ?

A member asked:

Would neurofibromatosis type 1 disqualify me from donating sperm to a sperm bank?

A member asked:

Can neurofibromatosis type 1 progress to neurofibromatosis type 2?

A member asked:

My son (1 year and 3 months old) has a neurofibromatosis type 1 (c4537t r1513x) . are there any restrictions for vacciantion for his condition?

A member asked:

I have a significant case of neurofibromatosis type 1. there are some issues at my job that are beyond stressful. can stress exacerbate nf1?

A member asked:

What is the life expectancy for someone with neurofibromatosis type 2?

A member asked:

Please tell me the life expectancy for someone with neurofibromatosis type 2?

A member asked:

I have chiari and neurofibromatosis both type 1, with a neurofibroma around c7. my headaches are daily and pretty intense. is surgery a good option?

A member asked:

My sister has neurofibromatosis type 2. she only has the cafe spots on her body. will i develop it too? is there a chance she will get a tumor? :(

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