Question 1

what are the tests for ehlers-danlos syndrome?

Accepted Answer

Usually none: The diagnosis is usually made on physical examination.  Since it's not something that can be treated with a pill, there's seldom any need to find the exact gene responsible (and there are many different ones that can do it).  For the very severe vascular form, a geneticist may confirm this, before or after birth.  I know several docs with e-d.  Good luck.

Question 2

what kind of disease is ehlers-danlos syndrome?

Accepted Answer

Big answer: Ehlers-danlos syndrome is a group of diseases with characteristic joint laxity, very lax skin, easy bruising and weakened blood vessels.  There are several gene mutations for the various clinical pictures of this syndrome.  Beyond that i would suggest you research a more indepth answer online.

Question 3

what are the symptoms of ehlers-danlos syndrome?

Accepted Answer

Disorder of collagen: Ehlers-danlos syndrome is a common disorder of collagen structure that causes easy bruising and poor wound healing. Patients with this conditions have a soft, velvety skin that is hyperelastic, joins that are lax and they have unusual scarring.
There are 10 variants. The most serious form is associated with rupture of visceral organs.

Question 4

what re worst risks from ehlers-danlos syndrome?

Accepted Answer

Bone abnormalities: Low bone density from eds can lead to problems healing fractures and have joint pain. Spine deformities such as kyphosis or scoliosis can also occur. Irritiable bowel syndrome and GI disturbances can also be problemmatic. Finally, nerve compression syndromes such as carpal tunnel can occur along with known skin conditions, and blood disorders. Check with your physician to discuss fully.

Question 5

has anyone heard of ehlers danlos syndrome causes?

Accepted Answer

Genetics: Ehlers-danlos is a genetic condition. There are no other known causes.

Question 6

what is ehlers - danlos syndrome and how can it be treated?

Accepted Answer

Ehlers-Danlos is: A group of inherited disorders that affect your connective tissues primarily your skin, joints and blood vessel walls. People who have ehlers-danlos syndrome usually have overly flexible joints and stretchy, fragile skin. Physical therapy, pain control, and sometimes joint replacement are some of the treatments needed to treat the syndrome since there is no cure.

Question 7

what is ehlers-danlos syndrome (eds)?

Accepted Answer

"Ehlers–Danlos": Ehlers–danlos syndrome (also known as "cutis hyperelastica") is an inherited tissue disorder caused by a defect in the body's synthesis of collagen. Collagen in connective tissue helps tissues to resist deformation. In the skin, muscles, ligaments, blood vessels and organs, collagen plays a very significant role and with increased elasticity or "stretchiness" they may not work right.

Question 8

i need a specialist for ehlers danlos syndrome for adults. suggestions?

Accepted Answer

Rheumatologist: It is impossible to send you to a specific hospital or clinic as the town is not mentioned. The specialty is  rheumatology and I would ask your PCP to recommend one in your area or nearby tertiary center.

Question 9

are headaches and migraine related to ehlers-danlos syndrome?

Accepted Answer

See Neurologist: I don't know of a association in general but in vascular eds. There is a tendency for blood vessels to burst. You need to see your doctor to see if  you might have this involvement from eds. Anyone with eds can garden variety migraines but you need to get the headaches checked out.

Question 10

if i have ehlers- danlos syndrome, what should i use to stabilize my joints?

Accepted Answer

Individualize: Ehlers-Danlos ranges from trivial to very serious. If you need to ask, see about getting with a physician who specializes in rehab medicine, braces and so forth and learn about the field and decide what's right.

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What are the tests for ehlers-danlos syndrome?

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Has anyone heard of ehlers danlos syndrome causes?

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What is ehlers - danlos syndrome and how can it be treated?

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What is ehlers-danlos syndrome (eds)?

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I need a specialist for ehlers danlos syndrome for adults. suggestions?

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Are headaches and migraine related to ehlers-danlos syndrome?

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If i have ehlers- danlos syndrome, what should i use to stabilize my joints?

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