Question 1

my doctor thinks that i have dysautonomia, due to my signs and symptoms i told him. which test would be best to do, and why, to determine the diagnosis? i was thinking ansar or tilt table test?

Accepted Answer

Tilt Table Testing: Tilt Table testing will be beneficial to assist in the diagnosis of autonomic dysfunction but if your physician feels you have this issue based on signs and symptoms a therapeutic trial of treatment might be more cost effective. History &amp; Exam is 90% of the diagnosis. Testing is often unnecessary and not very specific. ANSAR is not widely available. Follow your Doctor's advice.

Question 2

elevated igf-1 212 (53-191)-no signs of acromegaly; endo won't retest-wants an mri; have pots/dysautonomia; do i need the mri? tired of testing

Accepted Answer

2nd opinion: Hi. I would not do a pituitary MRI based on that IGF-1! Is it reproducible? Did the endo do a GH suppression test (GHST? The pituitary is famous for "incidentalomas", tumors that are incidentally found, but play no role in any pathophysiology. So if a tumor is seen, will the endo send a surgeon in?! Get a 2nd opinion from an experienced endo. I bet IGF-1 isn't reproducibly elevated. And do GHST.

Question 3

what exactly is dysautonomia?

Accepted Answer

Nervous system: It is a malfunctioning of the autonomic nervous syste. Dysautonomia is such a broad term that there many possible symptoms depending on which parts of the autonomic nervous system are affected. The most common symptoms are excessive thirst, excessive fatigue, dizziness or lightheadedness, rapid or slow heart rate, fainting (due to low blood pressure), and extreme anxiety that is not due to psychol.

Question 4

how can i cope with dysautonomia?

Accepted Answer

Dysautonomia: This is not an easy medical issue to overcome. It is a condition most often related to neurological disorders. The nerve system affecting your lower extremity is most common. I presume you have seen your doctor and/or neurologist. You must let them know that you are not responding as much as you like and alternative actions are likely to be discussed before a decision is made.

Question 5

how to tell if i have dysautonomia?

Accepted Answer

Symptoms: Dysautonomia is a rare symptom complex that includes inability to adjust for blood pressure ehen changing positions, inability to sweat, inability to regulate heart rate, and inability to achieve erection, among other symptoms.  Lightheadedness when standing up can occur in normal individuals.

Question 6

what are the tests for dysautonomia?

Accepted Answer

Many: There are several forms of dysautonomia and thus the tests vary. When people ask the question of testing, most are asking about familial dysautonomia (hsan3) which is found mainly in ashkenazi jewish populations. This condition has a genetic marker which can be tested for and will also identify carriers of the gene.

Question 7

can dysautonomia progress over time?

Accepted Answer

Depends what it is: From. For example, dysautonomia from a traumatic brain injury, once stabilized and out of early storming, will remain fairly stable. If it is from a progressive disease like ms, it can get worse. Dysautonomia can also be aggravated by certain things, such as infections, that can make it feel like it is progressing. A thorough history would be needed to suggest whether it is suggestive in each case.

Question 8

what sort of disorder is dysautonomia?

Accepted Answer

Neurological: The autonomic nerves are those that work without us thinking, controlling involuntary activities, like digestion, breathing, sweating, blood vessels dilating, body temperature...Dysautonomia refers to abnormal function of this system.

Question 9

is there any medication for dysautonomia?

Accepted Answer

Depends: Dysautonomia can be primary (no underlying cause) or secondary due to many causes. There is treatment for the primary type as well as treatment for the underlying cause of the secondary type. But the treatment for this disorder of the autonomic nervous system of either type depends on the expertise of the doctor and the patience of the patient.

Question 10

is fainting due to dysautonomia dangerous?

Accepted Answer

Yes: Any fainting is dangerous, due to fall risk!
this is a difficult diagnosis, and needs to be fully assessed and treated.

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Doctor answers about:

Dysautonomia signs

A member asked:

My doctor thinks that i have dysautonomia, due to my signs and symptoms i told him. which test would be best to do, and why, to determine the diagnosis? i was thinking ansar or tilt table test?

A member asked:

Elevated igf-1 212 (53-191)-no signs of acromegaly; endo won't retest-wants an mri; have pots/dysautonomia; do i need the mri? tired of testing

A member asked:

What exactly is dysautonomia?

A member asked:

How can i cope with dysautonomia?

A member asked:

How to tell if i have dysautonomia?

A member asked:

What are the tests for dysautonomia?

A member asked:

Can dysautonomia progress over time?

A member asked:

What sort of disorder is dysautonomia?

A member asked:

Is there any medication for dysautonomia?

A member asked:

Is fainting due to dysautonomia dangerous?

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