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A member asked:
Are there any new treatments for type 1 glycogen storage disease?
A doctor has provided 1 answer
Maintenance of close: to normal/ normal blood glucose & treatment of other metabolic problems can improve growth & extend lifespan in kids with GSD Types 1a & 1b. Some now live healthier lives into adulthood. GCSF is a medication to increase the number of white blood cells. Managing diet, dental, bone density, kidney, liver, etc.problems is key. See http://www.agsdus.org/html/typeigsd.html for infirmation & resources.
Answered 11/16/2017
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