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A 33-year-old member asked:

Can you die of cystic fibrosis?

4 doctor answers16 doctors weighed in
Dr. Judy Orton
Pediatrics 36 years experience
Yes but: Yes but with early diagnosis and regular care and adherence to prescribed therapy by a pediatric pulmonologist the long term survival has improved greatly in the past two decades.
Dr. James Ferguson
Pediatrics 47 years experience
We all die: CF has a variety of traditional gene expressions and sub forms. Proper surveylance and treatment has increased the expected lifespan of patient by decades in the past 30 years. Life is certainly different for the involved patient & their families, but the reality is life can be full with this dx.
Dr. Karl Muench
Clinical Genetics 62 years experience
Yes.: Although the complications of cystic fibrosis are treatable, and although the available treatments are helpful, the disorder shortens the normal life expectancy.
Dr. James Ferguson
Pediatrics 47 years experience
Life is different: 100% of people die. People with this condition have a variable life expectancy and face many more problems than the average person. Life includes close collaboration between docs at home and a specialty center. Life includes school, a profession, and many of the same challenges everyone else has. Whether they die in a car crash at 30 or from complications of the disease at 50, they do live a life.

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Last updated Sep 30, 2020
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