A member asked:

I have been struggling with pseudotumor cerebri my whole life and was told i was born with it. is it possible to have passed it to either of my children? what is the probability of either of them developing pseudotumor cerebri?

2 doctors weighed in across 2 answers

This disorder is considered "idiopathic" meaning they don't have a clear explanation of why it occurs, just a pattern of those in whom it occurs. There are a few rare, published family cases in the world literature. One in twins. These are not enough to create an inheritance pattern. It is certainly not a dominant pattern. I wouldn't worry about it.

Answered 12/12/2022

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"Pseudotumor" is NOT a genetic disorder period! But I suspect we will find genetic susceptibility one day. Many cases are associated with obesity, hormonal and metabolic issues, certain medications (espec. some antibiotics), vitamin A overdoses, cerebral venous sinus thrombosis, etc. Odds are very high that this will likely spare your children.

Answered 12/12/2022

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