Have you dealt much with neurofibromotoisi?

How can we help you?: All board certified dermatologist have had varying exposure to different subsets and severities of neurofibromatosis (nf). They can help make the diagnosis, excise neurofibromas and coordinate care if needed (ophthalmology, neurology, ent, orthopedics, genetics). They can also monitor for other associated conditions and findings.

Yes: Not much to offer for treatment except few conditions that your doctor may be able to help.

Yes: Neurofibromatosis is a chromosomal disorder. There are 2 distinct types of neurofibroamtosis(nf-1 and nf-2). Evaluation in an nf clinic will often help in education and treatment. www.ctf.org is the web site for the children's tumor foundation, whose mission is to help those with nf. On their web site is a list of mds and clinics who specialize in nf.

In children.: Many children with neurofibromatosis I have diagnosed with either radiographic, ct, mr, or nuclear imaging. I had developed an isotopic method of mapping out the neurofibromas in the body in 80s, predated MR imaging which now used for neurofibromatosis involving brain, spine, and extremities. I work with pediatricians, pediatric oncologists, orthopods, neurologists, and neurosurgeon

Yes: I have seen so many families I can not even estimate.

If: only a few don't worry, if multiple should get brain scan to see if no lesions.