A member asked:

Best and most effective way to treat a porphoria attack. and where to find a doctor with knowledge about porphoria. doctors i have seen is clueless ?

A doctor has provided 1 answer
Dr. Rebecca Gliksman answered

Specializes in Internal Medicine

Porphyria: https://porphyriafoundation.org/for-patients/about-porphyria/treatment-options/ http://www.genlab.co.zm/about-us/ https://www.unza.zm/schools/medicine/departments/pathology-microbiology The sites above may be able to provide you with some additional guidance. Since porphyria is due to heme and is varied a hematologist ( blood specialist doctor) in your country may be able to assist.

Answered 3/18/2020

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When must I call my doctor if the ER said I have acute porphyria?

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