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A member asked:
When do cafe au lait spots dur to neurofibromatosis stop appearing? would a person have them by the time they are a certain age if they are linked to neurofibromatosis, or can they pop up in their 30s?
A doctor has provided 1 answer
Some basics: NF1 clinical diagnosis requires 6 or more cafe-au-lait patches at least 5 mm in greatest diameter before puberty & 15 mm after puberty. In addition 2 or more neurofibromas, a plexiform neuroma, axillary freckling, lisch nodules, optic gliomas or an affected 1st degree relative. If you are preoccupied with NF1 see a geneticist for an eval.
Answered 8/28/2019
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