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Ooltewah, TN
A female asked:

My daughter is a twin and 7 years old she is missing 13q21-32. how can we research proper therapies for speech and physical? any top doctors to find

2 doctor answers2 doctors weighed in
Dr. Pierrette Mimi Poinsett
Pediatrics 40 years experience
Speech and Physical: Does your daughter have an Individualized Education Plan (IEP)? She may be eligible for school based physical and speech therapy. Her genetic deletion is rare- seek out help via the Genetics department of your nearest children's hospital to find out which genetics specialists have a particular interest in her deletion.
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Dr. James Ferguson
Pediatrics 48 years experience
Welcome to confusion: You are unlikely ever to find a special therapy or treatment protocol for this deletion. With luck you will find helpful people at the public school that design a set of modifications to her program that includes speech & physical therapy. Input from a developmental pediatrician or child neurologist can help the process. Her needs will be similar to others in the system.
Created for people with ongoing healthcare needs but benefits everyone.
Last updated Aug 10, 2017


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