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A member asked:
My daughter is a twin and 7 years old she is missing 13q21-32. how can we research proper therapies for speech and physical? any top doctors to find
2 doctors weighed in across 2 answers
Speech and Physical: Does your daughter have an Individualized Education Plan (IEP)? She may be eligible for school based physical and speech therapy. Her genetic deletion is rare- seek out help via the Genetics department of your nearest children's hospital to find out which genetics specialists have a particular interest in her deletion.
Answered 8/10/2017
587 views
Welcome to confusion: You are unlikely ever to find a special therapy or treatment protocol for this deletion. With luck you will find helpful people at the public school that design a set of modifications to her program that includes speech & physical therapy. Input from a developmental pediatrician or child neurologist can help the process. Her needs will be similar to others in the system.
Answered 8/10/2017
587 views
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