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A member asked:
I am pretty sure that i have eds are there any tests or things i should do to go about getting a diagnosis?
A doctor has provided 1 answer
Consult geneticist: Ehlers-Danlos Syndrome is a genetic disorder with hyper elastic connective tissue and can be inherited recessive or dominant. A thorough exam and history and gene analysis or skin biopsy can confirm diagnosis, as there are 13 different types, and other conditions like Marfan's have similar symptoms. See https://ehlers-danlos.com/what-is-eds/ for detailed information.
Answered 11/28/2017
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I fit all of the criteria for hypermobile EDS but to date only dx widespread OA and FMS. Would it be worthwhile trying to get an official dx of EDS?
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Is pots and GERD seen in any forms of eds other than hypermobility? Diagnosed with eds3. Dr so sure he doesn't feel need to do test to rule out eds4
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