A member asked:

Just dx with ehlers danlos. chronic pain since 12. no one believed my pain was real. now extremely disabled. how can i raise awareness if i'm homebnd?

A doctor has provided 1 answer
Dr. Adam Locketz answered

Specializes in Pain Management

Volunteer online: Ehlers-Danlos syndrome (EDS) is a group of heritable connective tissue disorders. There are six major types of EDS. There are many people who have forms of Ehlers Danlos and chronic pain who have not been diagnosed. Raising awareness of this condition though participation in online chat groups and spreading the message the pain is real can help.

Answered 3/14/2015

3.1k views

Thank

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