What are some treatments for tuberous sclerosis?

Managed, not cured: Ts is a lifelong process whose treatment begins with recognition, education and monitoring through life. It can be quite mild with no long term effects, or be devastating.Related seizures & emergence of soft tissue "tubers" in the brain & major organs can create problems.Periodic ct scans & ultrasounds to monitor the organs are common.Coordinated efforts of local & specialty drs is a must.

Management: Surgery for the tumors that need to be removed. Medication for seizures. Sirolimus and rapamycin have some specificity for TS symptoms but are powerful and side effects.