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A member asked:
What's it like to have a child with apert syndrome?
6 doctors weighed in across 2 answers
Difficult rewarding: Genetic condition is caused by gene mutation with problems of facial/cranial bone development. The medical problems come from these deformities. A loving, supportive & involved family is correlated with normal outcomes in alpert's people. There r many obstacles- surgeries, sleep apnea, frequent ear/sinus infections. http://children.webmd.com/apert-syndrome-symptoms-treatments-prognosis?page=2.
Answered 12/9/2013
5.6k views
Website: http://www.ccakids.com/ is the website for the children's craniofacial association, with answers about apert's syndrome. Craniofacial surgery is done by a skilled team. Hearing is assessed; genetic testing is done and development is monitored. Pediatric hand surgeons tailor surgery to the type of hand deformity present. Parents may need support in responding to questions about baby's appearance.
Answered 9/11/2019
5.6k views
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