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Mechanicsburg, PA
A 17-year-old female asked:

I have pots syndrome & hypermobility syndrome. all of muscles are weak. i have trouble pooping, controlling my bladder and bowel. no doctor knows why.

3 doctor answers5 doctors weighed in
Dr. James Rochester
Family Medicine 27 years experience
Something missing: POTS and hypermobility synd should not cause probs with bowel/bladder control. Would start with seeing neurologist as the bowel/bladder problem could be sign of neurologic problem. Please see neurologist and explain exactly what you posted here. Testing and imaging in order to try and find proper diagnosis. Hope this was helpful. Best of luck. Dr R
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Alan Steinbach
Specializes in Family Medicine
Try beta blockers: Postural Orthostatic Tachycardia Syndrome (POTS) could cause all of the problems you note. Dr Fisher at Mayo and others think that beta blockers (used to control blood pressure and heart rate) may help. Why is a more difficult question, and I'm not aware of a definite explanation other than problems with the autonomic/involuntary nervous system balance.
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Laurence Badgley
General Practice 54 years experience
Dysautonomia: 18y fem has "Hypermobility Syndrome, weak muscles, POTS, difficulty controlling bladder/bowel". Autonomic nerves are tethered at vertebral foramina & subluxing joints, especially sacroiliac joints, impinge these nerves arousing neural stimuli of smooth muscles of arteries, intestine & bladder. Dysautonomic effects manifest as patient describes. Many of these patients go on to develop Fibromyalgia.
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Laurence Badgley
General Practice 54 years experience
Provided original answer
In 2010, Rheumatologist Dr. Rodney Grahame edited a book, "Hypermobility, Fibromyalgia & Chronic Pain", wherein several British physicians acknowledged the pathological relationship between Joint Hypermobility Syndrome and Fibromyalgia.
Sep 4, 2015
Dr. Laurence Badgley
General Practice 54 years experience
Provided original answer
Many Fibromyalgia, FM, symptoms represent dysautonomia, which is abnormal organ functions due to irregular signals of parasympathetic & sympathetic nerves and which arise as these nerves are impinged, where they are tethered, by joints rendered hypermobile via inheritance, Hypermobility Syndrome, or from lax/injured ligaments.
Sep 4, 2015
Dr. Laurence Badgley
General Practice 54 years experience
Provided original answer
Amongst my industrial injury clients have been females whose IC symptoms remitted after they had surgical fusion of a disordered & hypermobile sacroiliac joint caused by lifting and slip & fall injuries; diagnosed via Occupational Disabilities Guidelines, ODG, criteria.
Sep 4, 2015
Last updated Oct 18, 2016

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