A member asked:

I have ehlers danlos syndrome and i experience cold hands and feet, tingling and small muscle spasms. could it all be linked to the ehlers danlos?

3 doctors weighed in across 2 answers

Unlikely: Look for another cause. You may not find it. Keep them warm. Best wishes.

Answered 7/23/2015

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Dr. Bradford Landry answered

Specializes in Pediatric Rehabilitation Medicine

Dysautonomia: Dysautonomia is fairly common in many patients diagnosed with EDS, which could perhaps explain the cold hands/feet and tingling. Mechanism isn't exactly clear but is probably related to some sort of underlying neuropathy or sudomotor dysfunction. Muscle spasms (I assume meaning twitching) is probably more related to stress, anxiety, fatigue, etc. EMG and autonomic testing would be helpful.

Answered 11/7/2017

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