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A 48-year-old member asked:

is it possible for people with eds type 4 (vascular) to live normal lives?

1 doctor answer3 doctors weighed in
Dr. William Lages
Rheumatology 68 years experience
Very difficult: True Ehler-Danlos type 4 is characterized by facial changes, translucent skin through which vessels can be seen , easy bruising, and uterine and cardiac problems related to medium and large artery damage. Each event is treatable to some degree, pregnancy is advised against, and some problems require emergency treatment. It is autosomal dominant. With good care one may live long but not normally.

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A 21-year-old member asked:

Why do some with clinical eds diagnoses test negative for veds, but have vascular events?

1 doctor answer2 doctors weighed in
Dr. Kathryn Riordan
Rheumatology 38 years experience
Older testing: If a comprehensive evaluation is done the people with vascular risk can be determined. The incidence of vascular complications reflects available testing about 15 years ago. With improved testing techniques unanticipated vascular complications are rare without additional risk factors to include smoking.
A 20-year-old member asked:

Do 10-25% of those with classical eds who tested negative for vascular eds have vascular issues?

2 doctor answers3 doctors weighed in
Dr. Kathryn Riordan
Rheumatology 38 years experience
No: If a comprehensive evaluation is done the people with vascular risk can be determined. The incidence of vascular complications reflects available testing about 15 years ago. With improved testing techniques unanticipated vascular complications are rare without additional risk factors to include smoking.
A 21-year-old member asked:

What causes vascular lesions?

2 doctor answers4 doctors weighed in
Dr. Gurmukh Singh
Pathology 49 years experience
Depends: It depends on what type of vascular lesion one is dealing with.
Dr. Shoaib Shafique
Vascular Surgery 34 years experience
Mostly smoking, high cholesterol and diabetes. There are congenital vascular lesions as well.
Apr 4, 2013
A 43-year-old member asked:

Explain vascular endothelial growth factor?

2 doctor answers2 doctors weighed in
Dr. Ed Friedlander
Pathology 44 years experience
Guide-molecule: Wherever new tissue is growing, vegf guides the new blood vessels. We have medicines that suppress vegf and slow cancers; they help in some cases. Good luck.
A 32-year-old member asked:

How do I know if a vascular surgeon is a good one?

2 doctor answers3 doctors weighed in
Dr. Irv Loh
Dr. Irv Lohanswered
Cardiology 49 years experience
Training, credential: Start with training center, board certifications, where they are working now and for how long. Malpractice records can be useful, though misleading if takes high risk cases. Ask your doctor if he/she would send their mother to this doctor.

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Last updated Jun 30, 2014

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