What to do if my daughter is suffering from leighs syndrome?

See a geneticist: Leigh's syndrome is from either a genetic mutations in mitochondrial dna that impact function of mitochondria (energy sources that run cells) in an area of the brain important for motor movements or by mutation of a gene on the x chromosome that produces another group of substances needed for cell metabolism. It may be treated with thiamine or vitamin b1. Clinical trials of new medicines below:.