Question 1

what toys would help a child with cystic fibrosis?

Accepted Answer

Any: Toys that involve blowing can be helpful, like whistles, bubbles, etc. Any blowing type toy can help with the respiratory therapy that a child with cystic fibrosis may have.

Question 2

what is done for a child with cystic fibrosis?

Accepted Answer

Supportive care: CF patients benefit from active coordinated care involving their pcp and a regional cystic fibrosis care center.These are usually part of a children's hospital and involve pediatric pulmonologists and other respiratory care specialists.

Question 3

how can i cope with a child with cystic fibrosis?

Accepted Answer

Clinic/online: Your CF clinic should be able to help you and other family members, and direct you towards available help channels, a lot of them online. The clinic's social worker should be a great source for that information. A great source for CF families and good place to start online is the cystic fibrosis foundation website http://www.Cff.Org/livingwithcf/.

Question 4

is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment ?

Accepted Answer

Yes: Avoiding respiratory irritants is a good rule for a child with cf, but kids with this disease should not be restricted from living a life as normal as possible.

Question 5

what are healthy high calorie foods for a child with cystic fibrosis?

Accepted Answer

High fat foods: Fats contain twice the calories of proteins or carbohydrates per ounce so high fat foods or supplements are the easiest way to add extra calories to the diet.  Common examples include peanut butter, cream, butter, high fat cheeses, pizza, salad dressings, and many other foods.  Remember with a higher fat diet the child will need larger doses of pancreatic replacement enzymes.

Question 6

what are the chances of a child getting cystic fibrosis among the different racial groups in the u.s.?

Accepted Answer

Overall 1/3700: Acording to the CF foundation: the overall birth prevalence is 1/3700 . It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000.
More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents.

Question 7

what is the name of the child's test for cystic fibrosis?

Accepted Answer

Sweat Test: There is genetic testing testing analyzing dna, but you are probably thinking of a "sweat chloride test". In kids with cf, this chemical test of stimulated sweat is elevated.

Question 8

can a child have nasal pollups and not have cystic fibrosis?

Accepted Answer

Yes: Absolutely. Allergies are a very common cause of nasal polyps. Other causes exist as well, besides cystic fibrosis.

Question 9

can a child of 13 with cystic fibrosis play vollyball without struggling?

Accepted Answer

It's possible: Not all children (or adults) with CF have significant respiratory issues. So, many children participate in sports with some or no problems.  Using their inhalers may help tolerate activities better. Care should be taken to exercise in moderation, not to exhaustion. Additionally, the risk of dehydration may be higher with this disease, so drinking fluids is very important during sports.

Question 10

if only one parent is a carrier of cystic fibrosis, how likely is the child to be a carrier?

Accepted Answer

Close to zero: Unless one parent is unfaithful, or there is a spontaneous mutation, it can't happen.

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What toys would help a child with cystic fibrosis

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What toys would help a child with cystic fibrosis?

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What is done for a child with cystic fibrosis?

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How can i cope with a child with cystic fibrosis?

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Is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment ?

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What are healthy high calorie foods for a child with cystic fibrosis?

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What are the chances of a child getting cystic fibrosis among the different racial groups in the u.s.?

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What is the name of the child's test for cystic fibrosis?

A member asked:

Can a child have nasal pollups and not have cystic fibrosis?

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Can a child of 13 with cystic fibrosis play vollyball without struggling?

A member asked:

If only one parent is a carrier of cystic fibrosis, how likely is the child to be a carrier?

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