Question 1

lenox gastaut syndrome average life expectancy?

Accepted Answer

Haven't seen numbers: Haven't seen any numbers on life expectancy of lennox-gastaut patients. Maybe nobody has collected and published that information. One website reported a 3%-7% mortality in patients over a 9 year period (that sounds like 1/2 % per year). The deaths were often due to accidents. In such disorders, if a person is watched and cared for closely, he can outlive parents, and die of other natural causes.

Question 2

what is the life expectancy of someone woth kearn- sayres syndrome?

Accepted Answer

No data about this: Life expectancy is generally reduced but there is no data available to tell us how much it is reduced. It depends on the complications of the disease, especially if there are cardiac problems.

Question 3

what is the life expectancy for kids who have treachers collins syndrome?

Accepted Answer

Normal: If the craniofacial abnormalities are addressed then the life expectancy can be otherwise normal.

Question 4

my friend has a mild form of marphan syndrome. she takes her medication. what's her life expectancy?

Accepted Answer

Marfan syndrome: With excellent care, can be normal. Cardiac and vascular care by specialists is essential.

Question 5

what is the life expectancy with triple x syndrome?

Accepted Answer

Normal: Life expectancy should be normal. There are no effects that affect heart, or other major systems that would reduce life expectancy.

Question 6

what is the life expectancy for kids with noonan syndrome?

Accepted Answer

May be normal: Children with Noonan's Syndrome may have cardiac abnormalities such as pulmonic stenosis, ASD (atrial septal defect), VSD (ventricular septal defect). If these abnormalities are mild, then the life expectancy may be normal.

Question 7

what is the life expectancy for people with loeys-dietz syndrome?

Accepted Answer

Not Known: This  disease has been diagnosed in about 300-500 people and is known as a disease entity only since 2005. Life expectancy is expected to increase like in Marfan's syndrome with improved awareness and medical progress.

Due to the high risk of death from aortic aneurysm rupture, patients should be followed closely.

A valuable resource for this is 
http://www.Loeysdietz.Org/index.Ph.

Question 8

does wpw syndrome affect life expectancy?

Accepted Answer

Depends: If diagnosed and properly treated (usually with a procedure called an ablation) one can have a normal life expectancy. However, prior to treatment a patient may have a fast heart rhythm that can be dangerous and potentially life threatening.

Question 9

what's the life expectancy for trisomy x syndrome?

Accepted Answer

Normal: These women appear no different from any other and have no special problems.

Question 10

what is the life expectancy for patients with apert syndrome?

Accepted Answer

Normal: before neurosurgeons learned how to open prematurely fused skull sutures, patients who went untreated would have severe effects from constricting the brain, since the skull could not enlarge fast enough to accommodate the growing brain. When treated early, the brain is allowed to grow normally.

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Vater syndrome life expectancy

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Lenox gastaut syndrome average life expectancy?

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What is the life expectancy of someone woth kearn- sayres syndrome?

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What is the life expectancy for kids who have treachers collins syndrome?

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My friend has a mild form of marphan syndrome. she takes her medication. what's her life expectancy?

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What is the life expectancy with triple x syndrome?

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What is the life expectancy for kids with noonan syndrome?

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What is the life expectancy for people with loeys-dietz syndrome?

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Does wpw syndrome affect life expectancy?

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What's the life expectancy for trisomy x syndrome?

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What is the life expectancy for patients with apert syndrome?

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