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A member asked:
What is the life expectancy for people with loeys-dietz syndrome?
A doctor has provided 1 answer
Not Known: This disease has been diagnosed in about 300-500 people and is known as a disease entity only since 2005. Life expectancy is expected to increase like in Marfan's syndrome with improved awareness and medical progress. Due to the high risk of death from aortic aneurysm rupture, patients should be followed closely. A valuable resource for this is http://www.Loeysdietz.Org/index.Ph.
Answered 1/8/2018
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