Question 1

23 male, got dysautonomia due to ehlers danlos syndrome. bp 120/60-70 hr 55. lightheaded, short of breath. drink alcohol, bp 130/80, symptoms go away?

Accepted Answer

Possible syncope: I am a bit unclear on what your question is.  However, if you are dizzy and have dysautonomia, I would not recommend  taking anything that will make that worse and alcohol can be one of those offensive substances that I would recommend avoiding.  Work closely with your doctor on this.

Question 2

i started suffering from red blood on my stool coupled with pinkish urine. i drink alcohol but dont smoke and have a previous history of breast and colon cancer in both of my grandparents. i also have ehlers danlos syndrome but dont suffer with it.

Accepted Answer

Blood/fecal: Difficult without more history, but blood externally on stool is usually due to small tears in the lining of the colon/rectum and is common with constipation. Breast and colon cancers usually do not produce external blood on the stool, but it would be wise to get a colonoscopy or a FIT test to ease concern.  Pinkish urine can come with a urinary tract infection, but not from breast/colon disease.

Question 3

what are the signs of ehlers danlos syndrome hypermobility type in a young child?

Accepted Answer

This is type 1-: -it includes global ligamentous laxity, shortness of stature, though symmetrical, meaning proportions R normal. Type 1 seem 2 spare eye &amp;cardiac problems.

Question 4

what type of complications can a woman with ehlers danlos syndrome encounter from having a baby?

Accepted Answer

Pregnancy with EDS: Most of the patients with eds tolerate pregnancy without any difficulty with normal pregnancy and birth.Except in eds type 4 it can be associated with severe maternal complications.Most of the time the decision is made to do a cesarian section.

Question 5

what is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

Accepted Answer

EDS-3 is formal Dx: Eds-3 is a formal diagnosis whereas the term double jointedness is a term used to describe someone with hyperlax joints. Hyperlaxity is a normal variant and is only worrisome if it results in pain or joint instability whereby the term is changed to patholaxity (pathologic joint laxity).

Question 6

i'm ftm transgender. i want to have metoidioplasty in the future, but i have ehlers-danlos syndrome type 3. could i still have the metoidioplasty?

Accepted Answer

EDS/Metoidioplasty: Hi. If you undergo transgender surgery, you have the same risk as everyone for the surgery - plus muscle 
recovery with EDS will be important post=operatively. 
You might have some systemic symptoms that might last longer than most but may do just fine. Rest and give yourself ample time recovery after the surgery and good luck! Welcome to health tap, Dr. Ivy Fisher

Question 7

is it possible to have symptoms from several types of ehlers-danlos syndrome?

Accepted Answer

Usually - one type: There are a variety of types as you note and most  of the time this is the benign hypermobility type. It is  genetic and you may have  relatives also wiht it. Each type can have a variety of manifesations and so people with the same type can have  different  symptoms. Exercise is an improtant stabilizer  and you need to be doing this.

Question 8

is it possible to have symptoms of different types but not the full ehlers-danlos syndrome?

Accepted Answer

Spectrum of variety: Yes, it is possible to have several of the symptoms associated with eds and not have the formal syndrome. Many hyperlax individuals have severely loose joints (shoulder and knees are typical), yet they do not have formal eds.

Question 9

do all types of marphan and ehlers-danlos syndrome increase risk of aortic dissection?

Accepted Answer

No: There are  different types and different variation. Not all lead  to dissection. You need to discuss this with your physician if this is you. Marfan  and ehlers danlos are  different diagnoses and cause different clincial manifestations.

Question 10

could i have type 3  (hypermobility) ehlers danlos syndrome or hypermobility syndrome? my parents don't have eds.

Accepted Answer

Unlikely.: Ehlers danlos is an inherited condition, so if it doesn't run in your family, it's very unlikely that you have it. If your joints are unusually flexible you may just be more limber than normal. But if you are worried about it, see your doctor and find out for sure.

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Doctor answers about:

To drink when you have ehlers danlos vascular type

A member asked:

23 male, got dysautonomia due to ehlers danlos syndrome. bp 120/60-70 hr 55. lightheaded, short of breath. drink alcohol, bp 130/80, symptoms go away?

A member asked:

I started suffering from red blood on my stool coupled with pinkish urine. i drink alcohol but dont smoke and have a previous history of breast and colon cancer in both of my grandparents. i also have ehlers danlos syndrome but dont suffer with it.

A member asked:

What are the signs of ehlers danlos syndrome hypermobility type in a young child?

A member asked:

What type of complications can a woman with ehlers danlos syndrome encounter from having a baby?

A member asked:

What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

A member asked:

I'm ftm transgender. i want to have metoidioplasty in the future, but i have ehlers-danlos syndrome type 3. could i still have the metoidioplasty?

A member asked:

Is it possible to have symptoms from several types of ehlers-danlos syndrome?

A member asked:

Is it possible to have symptoms of different types but not the full ehlers-danlos syndrome?

A member asked:

Do all types of marphan and ehlers-danlos syndrome increase risk of aortic dissection?

A member asked:

Could i have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? my parents don't have eds.

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