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my child has neurofibromatosis what is the best way to explain it to the other kids

A 42-year-old member asked:
Dr. Ken Yonemura
36 years experience Neurosurgery
Neurofibromatosis: Neurofibromatosis is a problem involving an overgrowth of the insulation around the nerves. Since there are nerves everywhere in the body, the tumors ... Read More
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A 54-year-old member asked:
Dr. Patricio Gargollo
20 years experience Pediatric Urology
Neurologist: I would recommend you talk to your sons neurologist. This is all information they can cover with you.
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A 45-year-old member asked:
Dr. Jeffrey Gene Kaplan
51 years experience Pediatrics
Tumors-seen and unse: Nf - autosomal dominant disorder in which neurofibromas grow and while these tumors may be benign, they often impinge on vital structures, compressing ... Read More
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A 48-year-old member asked:
Dr. Edward Smith
53 years experience Neurosurgery
Medical followup +: Regular medical checkups should be done. If you have neurologic abnormalities, get periodic examinations. Keep a positive attitude. Stay as active as ... Read More
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A 29-year-old female asked:
Dr. James Ferguson
45 years experience Pediatrics
New NF case: Many cases of nf represent a spontaneous new mutation. If you have a mild case, it is now in your dna and can be passed on to your children as the sam ... Read More
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A 32-year-old member asked:
Dr. Nalinaksha Joshi
22 years experience Neurology
Probably: Multiple lumps under skin could be neurofibromatosis, lipomas etc.
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A 47-year-old member asked:
Dr. Gerald Mandell
51 years experience Nuclear Medicine
Nerve ; brain tumors: Neurofibromatosis, inherited problem, with varying degrees of involvement from mild to severe. Neurofibroma is benign tumor that originates from the ... Read More
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A 49-year-old member asked:
Dr. Julian Bragg
16 years experience Neurology
Gene mutation: Neurofibromatosis is caused by a mutation in a gene that controls nerve growth. While it can be passed from parent to child, about half of cases are ... Read More
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A 45-year-old member asked:
Dr. Lisa Hogan
34 years experience General Surgery
Congenital condition: Neurofibromatosis is an autosomal dominant genetic disease, meaning if one of your parents has the disease you have a 50% chance of inheriting the dis ... Read More
A 47-year-old member asked:
Dr. James Ferguson
45 years experience Pediatrics
Define rare: At 1/4000 births this is relatively common compared to many genetically influenced afflictions. About a 3rd are new mutations and the others are passe ... Read More
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