Question 1

is there any exercise or/and diet that would be helpful in slowing down the progress of inclusion body myositis ?

Accepted Answer

No: This illness is refractory to treatment. Try to stay as physically active as you can for as long as you can. See if you can get enrolled in a clinical trial. As much as I'd like to be able to recommend something, and as eager as others will be to offer ideas that will not be helpful, I must be up front with you -- do not expect any intervention to be more effective than a placebo.

Question 2

what are dermatomyositis, polymyositis and inclusion body myositis?

Accepted Answer

Separate myosotis : Each is a specific type of inflammatory muscle disease. We call this myositis because the muscles can show information. When you have this you need an extensive evaluation looking for other associated issues. Therapy will be different for each of these.

Question 3

how to beat inclusion body myositis?

Accepted Answer

Physical therapy: As you already know you have a rare disorder at a rather young age. Positive attitude under the care of an authority in the field, who is up to date on all the latest research and treatment with specialized physical therapy is the way to beat it. Check the internet particularly at University of Phoenix.

Question 4

what is  inclusion body myositis (ibm)?

Accepted Answer

Genetic disorder: Ibm is a genetic disease in the group of diseases called inflammatory myopathies. It is progressive and leads to muscle weakness and wasting away of muscle.  There is no cure but there are therapies that can help with symptoms.

Question 5

what are the diagnostic tests for inclusion body myositis?

Accepted Answer

Muscle biopsy: Only a muscle biopsy with both regular analysis and electron microscope analysis of the tissue samples can  confirm a diagnosis. There is no blood test or scan that can confirm IBM.One must first suspect this disease clinical grounds before considering a biopsy.

Question 6

what defining difference exists between polymyositis and inclusion body myositis?

Accepted Answer

Different diseases: Both are muscle diseases that are difficult to treat, polymyositis tending to affect shoulders and hips, inclusion body mysoitis the forearms. Polymyositis is the more treatable, but the more likely to become very serious, we know something of its cause unlike inclusion body myositis. Under the microscope they look different. Both are difficult and i wish you good luck and courage.

Question 7

what are the very latest and cutting edge treatments for inclusion body myositis (ibm)? any good trials out there?

Accepted Answer

I am sorry no knew: Treatment.There is no standard course of treatment to slow or stop the progression of the disease.
Management is symptomatic. Prevention of falls is an important consideration. Specialized exercise therapy may supplement treatment to enhance quality of life.

Question 8

what is inclusion body myositis?

Accepted Answer

A muscle disease: It is one of many types of muscle disease, typically affecting the organelles that produce energy in the muscle - the mitochondria.

Question 9

have human growth hormone (hgh) or anabolic steroids ever been used to treat the symptoms of inclusion body myositis (ibm)?  why not?

Accepted Answer

No: Not to my knowlege.  Contact the nih.Gov site since they might be recruting people with this disorder for some studies.

Question 10

i have lupus, ra, as, inclusion body myosytis.  i live in western ny. is there a better place to live?

Accepted Answer

Usually doesn't help: While many patients with various forms of arthritis will often report improvement with a change in climate (warm dry vacation, for example), these effects are usually temporary and moving permanently to your favorite vacation spot will probably "wear off" in time.

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Doctor answers about:

Leg exercises for inclusion body myositis

A member asked:

Is there any exercise or/and diet that would be helpful in slowing down the progress of inclusion body myositis ?

A member asked:

What are dermatomyositis, polymyositis and inclusion body myositis?

A member asked:

How to beat inclusion body myositis?

A member asked:

What is inclusion body myositis (ibm)?

A member asked:

What are the diagnostic tests for inclusion body myositis?

A member asked:

What defining difference exists between polymyositis and inclusion body myositis?

A member asked:

What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? any good trials out there?

A member asked:

What is inclusion body myositis?

A member asked:

Have human growth hormone (hgh) or anabolic steroids ever been used to treat the symptoms of inclusion body myositis (ibm)? why not?

A member asked:

I have lupus, ra, as, inclusion body myosytis. i live in western ny. is there a better place to live?

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