Question 1

i have ehlers-danlos hypermobility syndrome. what should i do?

Accepted Answer

Maintain muscle tone: Muscle tone and strength may provide adequate dynamic stabilization across your loosest joints affected by eds. Joints commonly affected include the shoulder, and knee. Strengthening the musculature around those joints can serve you well and help prevent the need to progress to a surgical remedy to stabilize the lax joints.

Question 2

could i have type 3  (hypermobility) ehlers danlos syndrome or hypermobility syndrome? my parents don't have eds.

Accepted Answer

Unlikely.: Ehlers danlos is an inherited condition, so if it doesn't run in your family, it's very unlikely that you have it. If your joints are unusually flexible you may just be more limber than normal. But if you are worried about it, see your doctor and find out for sure.

Question 3

what is the difference between ehlers-danlos syndrome and joint hypermobility syndrome?

Accepted Answer

Part of Ehlers Danlo: Hypermobiity is one of the common types of the variations of ehlers danlosxsyndrome complex.

Question 4

what can someone do for hypermobility syndrome / ehlers-danlos syndrome?

Accepted Answer

Strengthen: Strengthening opposing muscle groups helps stabilize joints.  Avoid concussive sporting activities such as tennis, but leap to activities suck as cycycling, ei. Stationary, or road (mtb) bike. But stabilizing your joints with my recommendations, which involved weight or machines is best. (machines are safeest, because your joints are tracked in a specific motion.) hypermobility causes arthritis.

Question 5

is there any pain relief from ehlers danlos syndrome hypermobility?

Accepted Answer

Difficult problem: Pain control in eds is a difficult problem because of the vascular bleeding that is encountered.For that reason your pain medication have to be individually tailored. The best bet for you is to go to a pain clinic, preferably at a teaching hospital where they might. Have more experience with your problem.

Question 6

what are the signs of ehlers danlos syndrome hypermobility type in a young child?

Accepted Answer

This is type 1-: -it includes global ligamentous laxity, shortness of stature, though symmetrical, meaning proportions R normal. Type 1 seem 2 spare eye &amp;cardiac problems.

Question 7

what is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

Accepted Answer

EDS-3 is formal Dx: Eds-3 is a formal diagnosis whereas the term double jointedness is a term used to describe someone with hyperlax joints. Hyperlaxity is a normal variant and is only worrisome if it results in pain or joint instability whereby the term is changed to patholaxity (pathologic joint laxity).

Question 8

30 y/o female history of ehlers-danlos syndrome hypermobility, cholecystectomy, appendectomy and rectal bleeding. is it common to manipulate colonoscopy and hemorrhoid banding tools via the vaginal canal? i'm having vaginal pain post these procedures?

Accepted Answer

: You may have a referred pain, those procedures do not involve the vagina. However, if you observe discharge or blood coming out from the vagina along with the pain, you should see a GYN doctor. Rarely, a procedure done in the rectum can damage the genital organ in front of the rectum. i.e. the vagina, due to their anatomic proximity but I doubt with just hemorrhoid banding.

Question 9

how to cope with hypermobility/ehlers danlos syndrome pain?

Accepted Answer

Pain clinic: Enroll in a pain clinic at a teaching hospital for best results.

Question 10

should someone with connective tissue disease (hypermobility ehlers danlos syndrome) avoid a lumbar puncture, and seek alternative diagnostic methods, due to the risk of a csf leak? i know it's a risk for all lp's but already a risk in eds. thanks?

Accepted Answer

: Overwhelmingly lumbar puncture avoided in EDS due to meningeal breach.Alternative methods are best

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Doctor answers about:

Ehlers danlos hypermobility syndrome

A member asked:

I have ehlers-danlos hypermobility syndrome. what should i do?

A member asked:

Could i have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? my parents don't have eds.

A member asked:

What is the difference between ehlers-danlos syndrome and joint hypermobility syndrome?

A member asked:

What can someone do for hypermobility syndrome / ehlers-danlos syndrome?

A member asked:

Is there any pain relief from ehlers danlos syndrome hypermobility?

A member asked:

What are the signs of ehlers danlos syndrome hypermobility type in a young child?

A member asked:

What is the difference between ehlers-danlos syndrome hypermobility type 3 and double jointedness?

A member asked:

30 y/o female history of ehlers-danlos syndrome hypermobility, cholecystectomy, appendectomy and rectal bleeding. is it common to manipulate colonoscopy and hemorrhoid banding tools via the vaginal canal? i'm having vaginal pain post these procedures?

A member asked:

How to cope with hypermobility/ehlers danlos syndrome pain?

A member asked:

Should someone with connective tissue disease (hypermobility ehlers danlos syndrome) avoid a lumbar puncture, and seek alternative diagnostic methods, due to the risk of a csf leak? i know it's a risk for all lp's but already a risk in eds. thanks?

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