Question 1

is elmiron safe during pregnancy? my doctor said it is safe. i have interstitial cystitis.

Accepted Answer

FDA Category B:  Just as when you previously asked, Pentosan polysulfate sodium or Elmiron is US FDA pregnancy category B. Per Drugs.Com - "Animal reproduction studies have failed to demonstrate a risk to the fetus and there are no adequate and well-controlled studies in pregnant women. Use is not recommended unless clearly needed."  We often prescribe Category b drugs to pregnant women.

Question 2

i have fibre muscular dysplasia is this caused by taking the drug elmiron (pentosan) for ten years   i take it for interstitial cystitis   ?

Accepted Answer

Here are some ...: It's natural to relate "new" health event with prior drug use. However, your clinical scenario showed you have suffered from multiple similar connective tissue-related conditions resulting from still much unknown causes. Besides, a 
10-yr span has incurred much change in the body. So, it's hard to connect Elmira with fibromuscular dysplasia, which has been known to occur more in women.

Question 3

incredibly painful interstitial cystitis flare! what can i do to ease the pain? i have naproxen, hydroxyzine, and elmiron and the pain stays at a 7!!

Accepted Answer

Have you tried...: Have you tried  over the counter Azo Standard or Pyridium ?   Both of these medications are designed to "take the sting out". Your urine will turn orange in color if you use them.

Question 4

i have interstitial cystitis im suppose to take elmiron (pentosan) medicine but im afraid to because the side effect is hair loss and i already lose to much hair?

Accepted Answer

Hair loss: Hair loss is a potential side effect but does not affect everyone.  Save the hair from you brush/comb for one week in a bag then start elmiron (pentosan) and  save hair for one week after taking elm iron and see if any difference.

Question 5

have mild lupus.urine dip showed moderate blood.otherwise normal.i have also very well controlled interstitial cystitis.should assume it's from the ic?

Accepted Answer

Hematuria: its to find out if the source of blood in urine is kidneys or bladder. You just ask for microscopic exam of urine. RBCs  from kidney in the urine are deformed or form castes or rouleaux. It's not so if the source of those red blood cells is bladder.

Question 6

does cysta q work for interstitial cystitis?

Accepted Answer

Yes: For some patients work as long as they stick with diet modification.

Question 7

which treatment works the best and fastest for interstitial cystitis?

Accepted Answer

IC treatments: Simple things like limiting caffeine and soda is a start.  There are no magic fixes for ic but there is no test that can tell you have it...Other things need to be ruled out first...A urologist is the best doc to start with...

Question 8

good ways to cope with an interstitial cystitis (painful bladder syndrome) sufferer?

Accepted Answer

Diet, diet& diet: Mainly sticking to the diet.  U can try Pyridium and prelief during flares, take zantac (ranitidine) and Tums regularly, elmirontherapy if indicated. Cysta q is a herbal supplement u can try pelvic floor therapy and aerobic exercise are good.  Manage endometriosis, ibs, and allergies aggressively.

Question 9

how does atarax (hydroxyzine) work to help interstitial cystitis pain?

Accepted Answer

Allergy: The thought is that part of ic is an allergic type response, whether its an allergy to foods/ or an autoimmune type reaction we don't yet know . But Atarax (hydroxyzine) acts to dampen inflammatory response associated with allergic reaction.

Question 10

are there any good home remedies for interstitial cystitis?

Accepted Answer

Yes: There are many ways to help with the symptoms. Dietary modifications help some people. I would check out http://www.Ichelp.Org for more information.

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Doctor answers about:

Does elmiron work well for interstitial cystitis

A member asked:

Is elmiron safe during pregnancy? my doctor said it is safe. i have interstitial cystitis.

A member asked:

I have fibre muscular dysplasia is this caused by taking the drug elmiron (pentosan) for ten years i take it for interstitial cystitis ?

A member asked:

Incredibly painful interstitial cystitis flare! what can i do to ease the pain? i have naproxen, hydroxyzine, and elmiron and the pain stays at a 7!!

A member asked:

I have interstitial cystitis im suppose to take elmiron (pentosan) medicine but im afraid to because the side effect is hair loss and i already lose to much hair?

A member asked:

Have mild lupus.urine dip showed moderate blood.otherwise normal.i have also very well controlled interstitial cystitis.should assume it's from the ic?

A member asked:

Does cysta q work for interstitial cystitis?

A member asked:

Which treatment works the best and fastest for interstitial cystitis?

A member asked:

Good ways to cope with an interstitial cystitis (painful bladder syndrome) sufferer?

A member asked:

How does atarax (hydroxyzine) work to help interstitial cystitis pain?

A member asked:

Are there any good home remedies for interstitial cystitis?

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