Question 1

my daughter has cchs- her dr seems puzzled when we explain that her o2 sats run low, while still maintaining an appropriate co2 level.  the best they have come up with is malacia- she shows no signs of pulmonary hypertension.  what else should we have rul

Accepted Answer

A few things: As you know, cchs is a rare condition and is not fully understood. There are a number of diseases that are associated with and syndromic with cchs.  An example is hirschprungs disease, which seems to share a link with an underlying genetic defect that also can cause cchs. The best way to evaluate is a pulmonoligist affiliated with a children's hospital that has a wide range of subspecialities.

Question 2

what does a 21% c02 level mean?

Accepted Answer

See below: All laboratory results need to be interpreted in the clinical context and the doctor who ordered the tests is usually in the best position to do that. Having said that, your level is a trace low, but that may be due to hyperventilation at the time of blood draw. Visit this site for info:
https://medlineplus.gov/ency/article/003469.htm
For good health - Have a diet rich in fresh vegetables, fruits, whole grains, milk and milk products, nuts, beans, legumes, lentils and small amounts of lean meats. Avoid saturated fats. Drink enough water daily, so that your urine is mostly colorless. Exercise at least 150 minutes/week and increase the intensity of exercise gradually. Do not use tobacco, alcohol, weed or street drugs in any form. 
Practice safe sex, if you have sex.

Question 3

my ccp is 300.0 what does it mean ?

Accepted Answer

CCP: Cyclic citrullinated peptide antibodies, igg, serum. Blood tests are performed helping your physician evaluate patients suspected of having rheumatoid arthritis (ra), or other auto-immune diseases. Please consult with the physician ordering these tests since the diagnosis is made together with clinical findings.

Question 4

what are if any limitation with fused c3c4?

Accepted Answer

Ask Payton Manning: Or better still, ask the back surgeon who operated on you for their recommendations.

Question 5

about how many people die from c.f. each year?

Accepted Answer

Below: This is the latest stats I could find:

Best Answer:   Deaths from Cystic Fibrosis: 485 deaths (NHLBI 1999)

Death rate extrapolations for USA for Cystic Fibrosis: 484 per year, 40 per month, 9 per week, 1 per day, 0 per hour, 0 per minute, 0 per second. Note: this extrapolation calculation uses the deaths statistic: 485 deaths (NHLBI 1999)

this calculation is using the 1999 stats--

Question 6

please tell me what does (m.b.ch.b) stands for?

Accepted Answer

MbChB: Bachelor of Medicine, Bachelor of Surgery, also called MBBS, in the UK &amp; New Zealand &amp; South Africa.

Question 7

what does low c3c actually mean and c4c is getting low?

Accepted Answer

Complement : Both C3 and C4 are components of a multi-protein system involved in immune response.  Both components being low means complement system is active and being consumed in the formation of immune complexes, generally not a good thing.  Please discuss the matter with your doctor in the full context of your health and any medical conditions that you may have.

Question 8

ok so c3c range is 90-180 mine went to 59 is thst severely low?

Accepted Answer

No: By itself, the number doesn't worry me. If it is being used to monitor lupus, it means that other signs of lupus activity need to be looked for.

Question 9

what causes a consistently low c3c and c4c . they don't return to normal ever.

Accepted Answer

Bad things: Since you had these labs drawn i assume you have symptoms to suggest that you have some diseass.  If you do not have symptoms then i suggest these labs are not helpful and you should consider not drawing them.  Most common cause is sle followed by vasculitis, autoimmune hemolytic anemia, cryoglobulinemia, and glomerulonephropathies.

Question 10

what does ccf mean?

Accepted Answer

Heart failure?: This is an uncommon abbreviation for congestive cardiac failure, or more often congestive heart failure.  This is its only medical use that i know.

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Doctor answers about:

Cchs

A member asked:

My daughter has cchs- her dr seems puzzled when we explain that her o2 sats run low, while still maintaining an appropriate co2 level. the best they have come up with is malacia- she shows no signs of pulmonary hypertension. what else should we have rul

A member asked:

What does a 21% c02 level mean?

A member asked:

My ccp is 300.0 what does it mean ?

A member asked:

What are if any limitation with fused c3c4?

A member asked:

About how many people die from c.f. each year?

A member asked:

Please tell me what does (m.b.ch.b) stands for?

A member asked:

What does low c3c actually mean and c4c is getting low?

A member asked:

Ok so c3c range is 90-180 mine went to 59 is thst severely low?

A member asked:

What causes a consistently low c3c and c4c . they don't return to normal ever.

A member asked:

What does ccf mean?

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