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Can neurofibromatosis kill you

A 42-year-old member asked:
Dr. Nalinaksha Joshi
Neurology 23 years experience
No and yes: Depending on the location eg sudden hemorrhage in tumor in brain-rare possibility. Continuous non treatable seizure. It is not like heart attack.
Dr. Pasala Ravichandran
A Verified Doctoranswered
A US doctor answeredLearn more
Very rare: You can develop neurofibroma in the chest. Occasionally the tumor can undergo malignant transformation. Any rapid increase in size should cause concer... Read More
Dr. Gerald Mandell
Nuclear Medicine 52 years experience
Depends: Neurofibromatosis comes in many forms and involvement. If the neurofibromas affect critical areas of function. Death is possible. Forinstance if tumor... Read More

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A 32-year-old member asked:
Dr. Clifford Selsky
Pediatrics 33 years experience
Clinical diagnosis: The best test for neutofibromatosis is a physical examination by a practitioner familiar with the nih criteria.
Dr. Johanna Fricke
Developmental and Behavioral Pediatrics 50 years experience
To diagnose: Genetic testing looks for a mutation in the nf1 gene on chromosome 17 or the nf 2 gene on chromosome 22, depending on which one the primary care docto... Read More
Dr. Gerald Mandell
Nuclear Medicine 52 years experience
Prenatal tests: There are prenatal genetic tests for neurofibromatosis. While test results can provide very important information for future parents. Genetic tests av... Read More
A 30-year-old member asked:
Dr. James Goodrich
Neurosurgery 39 years experience
Neurofibromatosis: Neurofibromatosis or nf is an inherited disorder or one that occur spontaneously in a patient. It is a disorder that involves the nerves, structures t... Read More
Dr. Gerald Mandell
Nuclear Medicine 52 years experience
Nerve ; brain tumors: Neurofibromatosis, inherited problem, with varying degrees of involvement from mild to severe. Neurofibroma is benign tumor that originates from the ... Read More
A 34-year-old member asked:
Dr. Tanya Russo
Pediatrics 25 years experience
NF resource: Here is a great resource where you can find lots of answers about neurofibromatosis: http://www.nfnetwork.org/
A 31-year-old member asked:
Dr. Scott Welker
General Surgery 27 years experience
Cafe Au Lait spots: Which look like this: http://www.Sciencephoto.Com/media/259913/enlarge . Also, the spot must appear, that is, not be there from birth (that would be ... Read More
A 37-year-old member asked:
Dr. Gerald Mandell
Nuclear Medicine 52 years experience
No: There is no cure for neurofibromatosis and goal of treatment is to relieve symptoms. Painful cutaneous and subcutaneous tumors and those that occur on... Read More
A 30-year-old member asked:
Dr. James Ferguson
Pediatrics 46 years experience
Possibly: Donating plasma is not necessarily effected by your neurofibromatosis as it may be by other issues in your life. You can go online and review eligibil... Read More
A 26-year-old male asked:
Dr. Jennifer Haley
Dermatology 23 years experience
Many others: There are a number of criteria necessary to make the diagnosis of neurofibromatosis. A relative with the condition, neurofibromas (fleshy bumps), mor... Read More
A 23-year-old male asked:
Dr. James Ferguson
Pediatrics 46 years experience
Remove ?????????????: Neurofibromatosis is a genetically related disease defined by information present in every cell of the body. You can remove some of the skin or deep t... Read More
A 38-year-old female asked:
Dr. Colin Sanner
Neurology 20 years experience
No, but...: Be kind to your skin, regardless of NF. Skin cancer is best prevented rather than treated. Don't use tanning beds at all, the risk of malignant skin t... Read More

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