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Can neurofibromatosis kill you

A 42-year-old member asked:
Dr. Nalinaksha Joshi
Neurology 24 years experience
No and yes: Depending on the location eg sudden hemorrhage in tumor in brain-rare possibility. Continuous non treatable seizure. It is not like heart attack.
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Dr. Pasala Ravichandran
A Verified Doctoranswered
45 years experience
Very rare: You can develop neurofibroma in the chest. Occasionally the tumor can undergo malignant transformation. Any rapid increase in size should cause concer... Read More
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Gerald Mandell
Nuclear Medicine 53 years experience
Depends: Neurofibromatosis comes in many forms and involvement. If the neurofibromas affect critical areas of function. Death is possible. Forinstance if tumor... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 34-year-old member asked:
Dr. Tanya Russo
Pediatrics 26 years experience
NF resource: Here is a great resource where you can find lots of answers about neurofibromatosis: http://www.nfnetwork.org/
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Gerald Mandell
Nuclear Medicine 53 years experience
Mostly genetic: Neurofibromatosis,mostly inherited problem, or mutation with degrees involvement from mild to severe. Neurofibroma benign tumor that originates from t... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 31-year-old member asked:
Dr. Scott Welker
General Surgery 28 years experience
Cafe Au Lait spots: Which look like this: http://www.Sciencephoto.Com/media/259913/enlarge . Also, the spot must appear, that is, not be there from birth (that would be ... Read More
Created for people with ongoing healthcare needs but benefits everyone.
Dr. Gerald Mandell
Nuclear Medicine 53 years experience
Many manifestations: Commonly nf gradually appears with development of brown flat spots and soft nodules under the skin. The brown (café-au-lai) spots are the main sympto... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 37-year-old member asked:
Dr. Gerald Mandell
Nuclear Medicine 53 years experience
No: There is no cure for neurofibromatosis and goal of treatment is to relieve symptoms. Painful cutaneous and subcutaneous tumors and those that occur on... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 30-year-old member asked:
Dr. James Ferguson
Pediatrics 47 years experience
Possibly: Donating plasma is not necessarily effected by your neurofibromatosis as it may be by other issues in your life. You can go online and review eligibil... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 26-year-old male asked:
Dr. Jennifer Haley
Dermatology 24 years experience
Many others: There are a number of criteria necessary to make the diagnosis of neurofibromatosis. A relative with the condition, neurofibromas (fleshy bumps), mor... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 23-year-old male asked:
Dr. James Ferguson
Pediatrics 47 years experience
Remove ?????????????: Neurofibromatosis is a genetically related disease defined by information present in every cell of the body. You can remove some of the skin or deep t... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 38-year-old female asked:
Dr. Colin Sanner
Neurology 21 years experience
No, but...: Be kind to your skin, regardless of NF. Skin cancer is best prevented rather than treated. Don't use tanning beds at all, the risk of malignant skin t... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 51-year-old male asked:
Dr. Roman Bronfenbrener
Dermatology 10 years experience
No: Neurofibromatosis is a genetic condition that affects patients from birth. Sarcoidosis is an acquired disease, albeit with some genetic predisposition... Read More
Created for people with ongoing healthcare needs but benefits everyone.
A 21-year-old member asked:
Dr. Cristina Carballo
Dr. Cristina Carballoanswered
Neonatology 40 years experience
No: Two distinct diseases caused by different genetics.
Created for people with ongoing healthcare needs but benefits everyone.
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