Question 1

atypical cystic fibrosis life expectancy?

Accepted Answer

Depends: Without a full exam and review of medical records and history of infections secondary to CF would be remiss in trying to become an actuarial.  Go see a pulmonologist and discuss the options and likely outcomes.

Question 2

what is the average life expectancy with cystic fibrosis?

Accepted Answer

Depends: The life expectancy for a cystic fibrosis (CF) patient depends on a variety of factors.  However, in the U.S., the average life expectancy is between 30-40 years of age.

Question 3

what is the life expectancy after a double lung transplant if cystic fibrosis?

Accepted Answer

Median is 5.5 yrs: That being said, population statistics can't be applied to individuals.  How well the surgery went, the match characteristics, how well oh avoid infection, your fitness prior to transplant, how well you tolerate the transplant regimen, etc all effect your quality of life and longevity.

Question 4

can men with atypical cystic fibrosis have children? i have 2 children, i have no symptoms of cf and i am 32 years old. never tested for cf.

Accepted Answer

Yes: Men with CF are not sterile. they get blocked ducts in the reproductive organs from thick secretions. The atypical or late onset CF patient may not get as much blockage and may be able to have children.

Question 5

can u have atypical cystic fibrosis if u have asthma, severe pancreas involvement & cftr m470v? report indicates a 2nd gene may be rare or unknown

Accepted Answer

Maybe: Surprisingly, M470V is a common variation. Studies have shown 50% of the population has this mutation and actually less likely to cause CF. Most individuals with CF and carry M470V have some other hidden etiology that is the cause, rather than M470V. Genetic expression may be variable and so will be the clinical manifestations. Speak with your doc and a geneticist for specific information.

Question 6

hello doctors, can you tell me how many late diagnosis of cystic fibrosis are in the united states every year, like in the mid 30's? is it common or uncommon? what would lead to the diagnosis? would you have had to have had illness your whole life?

Accepted Answer

: HealthTap volunteers don't have time to do this kind of research. You can find such answers very quickly yourself online. Start with the Cystic Fibrosis Foundation. Good luck.

Question 7

why does cystic fibrosis shorten life span?

Accepted Answer

Chronic Illness: Progress in management has improved the quality of life for CF patients but it doesn't take away the basic vulnerabilities of the illness. In its worst forms, the illness shuts down production of  enzymes that permit digestion of food & creates excessive mucous in the lungs that sets them up for deadly pneumonia & lung scaring. At some point, one of the complications will end their life.

Question 8

can an early cystic fibrosis test rule out the possibility of a late in life diagnosis?

Accepted Answer

Depends on test: Depending on the original test that was performed, it is unlikely that a diagnosis of CF will be made later in life.  Most of the testing that is done today is highly accurate.  If you are referring to yourself, at age 31, if the diagnosis of CF has not yet been made, and you have been relatively healthy all of your life, i would say it is unlikely you have it.

Question 9

what's the average life-span of a female with cystic-fibrosis and diabetes?

Accepted Answer

Unknown: If you ask many experts they will tell you statistics based on large populations, when you look at an individual its harder to predict. As long as the person takes good care of their diabetes and takes all the medicines for cystic fibrosis and sees the doctor frequently at any sign of infection then the person can live a very long life.

Question 10

my 36 year old son gets whitish wrinkled palms after a shower, he read it is a sure sign of cystic fibrosis, but he has never had signs of this his whole life. no family members have this. cbc/urine perfect. should he get tested? i'm a wreck?

Accepted Answer

: While it is true that aquagenic keratoderma can be associated with cystic fibrosis, it is not a definitive sign of the disease. In fact, many people with aquagenic keratoderma do not have any underlying medical conditions. If your son has never had any other signs it is unlikely that he has this condition. However, if he is concerned, he may want to speak with his doctor about getting tested.

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Doctor answers about:

Atypical cystic fibrosis life expectancy

A member asked:

Atypical cystic fibrosis life expectancy?

A member asked:

What is the average life expectancy with cystic fibrosis?

A member asked:

What is the life expectancy after a double lung transplant if cystic fibrosis?

A member asked:

Can men with atypical cystic fibrosis have children? i have 2 children, i have no symptoms of cf and i am 32 years old. never tested for cf.

A member asked:

Can u have atypical cystic fibrosis if u have asthma, severe pancreas involvement & cftr m470v? report indicates a 2nd gene may be rare or unknown

A member asked:

Hello doctors, can you tell me how many late diagnosis of cystic fibrosis are in the united states every year, like in the mid 30's? is it common or uncommon? what would lead to the diagnosis? would you have had to have had illness your whole life?

A member asked:

Why does cystic fibrosis shorten life span?

A member asked:

Can an early cystic fibrosis test rule out the possibility of a late in life diagnosis?

A member asked:

What's the average life-span of a female with cystic-fibrosis and diabetes?

A member asked:

My 36 year old son gets whitish wrinkled palms after a shower, he read it is a sure sign of cystic fibrosis, but he has never had signs of this his whole life. no family members have this. cbc/urine perfect. should he get tested? i'm a wreck?

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