See below: See your genetics specialist and see if there is other treatments that can be done.
Answered 7/18/2013
5.2k views
Global plan: You may want to contact the mda if you have not so far so they can help you with a global plan for care. Under nutrition is a soft progressive spiral to muscle loss, decreasing activity and increasing dependency. Placement of a gastric button with nightly infusions of nutrients can bring a kid back up to positive balance and preserve activity. Lesser measures may help.Good luck.
Answered 7/30/2013
5k views
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A doctor has provided 1 answer
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