Where can i find more information about the long term prognosis of brachycephaly in adults? any patient support groups or meetings?

To find a support : group, you have to know the reason for the brachycephaly. More babies have benign flattening of the back of their heads since the AAP started the "Back to Sleep" campaign to reduce risk of SIDS. 168 different genetic mutations can cause brachycephaly, according to the genetic website OMIM. Molecular genetic tests like Chromosomal Microarray were not available when today's adults were children.