Is there ssi help with epidermolysis bullosa?

Yes: Epidermolysis bullosa has several different types and they differ in their severity. (ebs - eb simplex is the most common). These are all genetic skin fragility syndromes and will require life long wound care which is very expensive. I have some patients with this condition and have helped all of them get SSI assistance for their disease. Good luck. You should not have too much difficulty.

Yes: Ssi criteria includes disorders of the skin. Since epidermolysis bullosa can vary widely in severity from minimal to fatal the hence level of disability can vary widely. You need to apply to th social security administration. If you are not already familiar debra research association of americ is an excellent resource.