What is maroteaux lamy syndrome?

Rare disease: Maroteaux-lamy Syndrome, a type of dwarfism is due to a deficiency in a specific mucopolysaccharide. Treatment is available but is the most expensive treatment in the world, costing 365,000 dollars a year, according to Wikipedia. That is criminal! See the discussion here: https://en.wikipedia.org/wiki/Maroteaux%E2%80%93Lamy_syndrome Here's another page on the disease: https://rarediseases.org/