Want to help keep quality of life after diagnosis of dementia ( lewy bodies)?

Beyond yourcontrol: Create a surrogate whoshould have your power of attorny & desires often when DX is made power to rationalise & decide is gone be specific with your wishes.

Learn as much: As you can about the illness and how to deal with it. Tha alzheimer's association is a good place to start. I wish you the best.

Use available Rx!!!!: Dopamine meds for physical parkinsonism: Azilect (mao-b selective inhibitor) & sinemet +/- Comtan (stalevo (carbidopa and levodopa and entacapone) is both together). Tailor rx watching for side effects. Avoid Dopamine agonists (requip xl/mirapex er/neupro)--too side effect prone for lewy body patients. For dementia: namenda, paired with Exelon patch or aricept. For psychosis: seroquel or even clozaril. For excess sleepiness: nuvigil.

Understand disease: Neurodegenerative d/o featuring milder physical parkinsonism than parkinson's disease typically. (slowed movements, stiff/rigid muscles & posture, possibly resting tremor). But with early dementia, often with associated psychosis (visual hallucinations, delusional thoughts), excessive sleepiness, depression/anxiety/apathy, & rbd. Rbd = rem behavior d/o, causing acting-out of dreams in rem sleep.