Please share an interesting fact about living with amyotrophic lateral sclerosis.

Ignore: Consider assistive technology set up early on, like recording voice for speaking technology.

Ignore: Make sure to put your team together, that can help you deal with the pulmonary, psychological stress, psychiatric, pt, neurological effects of this disease.

Ignore: This is a progressive disease where weight loss is imminent.

Ignore: Worthwhile to try riluzole, and potentially join local research studies.

Ignore: Go to an ALS center for evaluation so that the latest treatments can be offered.

Ignore: Need to decide with your doc how aggressive you want your treatment to be as the disease progresses.

Ignore: ALS can be a familial disease that is passed on in family members.

Ignore: Patients with ALS who are cared for by multidisciplinary ALS centers tend to have better outcomes.

Ignore: ALS does not affect a person's sexual, bladder or bowel function. The five senses are preserved too.

Ignore: Technology (smart phone, tablet) is a great resource to help you communicate with people.

Ignore: ALS occurs with no racial, ethnic, or socioeconomic boundaries. ALS can strike anyone.

Amyotrophic: Amyotrophic lateral sclerosis is also referred to as motor neuron, Charcot, & Lou Gehrig's diseases.

Don't: Don't get frustrated in not being able to do things. Accept that a loved one helps because they love.

Many: Many folks get frustrated and think they are a burden to loved ones. Don't forget who u r 2 them.