Question 1

how common is von hippel-lindau disease?

Accepted Answer

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life.

Question 2

what are the tests for von hippel-lindau disease?

Accepted Answer

Diagnosis: Clinical diagnosis of vhl is based on the presence of two characteristic tumors or, in the presence of a family history of vhl, occurrence of one characteristic tumor. However, a family history is often difficult to recognize due to the variability in clinical presentation of vhl both between and within affected families.

Question 3

how common is von hippel-lindau disease in people?

Accepted Answer

Rare: This is an extremely rare genetic disorder.

Question 4

what can i do to find out if i have von hippel lindau disease?

Accepted Answer

Do I have VHLD?: Best to make an appointment to speak with your physician . In advance try to gather as much of your family medical history  as  possible. I suspect you have your own reasons for worrying about this rare genetic disease. Good luck.

Question 5

what is the definition or description of: von hippel lindau disease?

Accepted Answer

Angiomatosis: Von Hippel Lindau disease is angiomatosis of retina and cerebellum ,it is associated with an increased incidence of hypernephroma, pheochromocytoma , and epandymoma.

Question 6

what are the common presenting symptoms of von hippel-lindau disease?

Accepted Answer

Autosomal dom: Hereditary disorder associated with presence of hemangioblastomas, and secondary headaches, incoordination and imbalance, with loss of vision.  Big problem is association with retinal lesions, kidney cancer, and pheochromocytomas.

Question 7

i have just been told i have von hippel-lindau disease. what? why? how did i get it?

Accepted Answer

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life.

Question 8

what are von hippel - lindau disease and lennox/gastaut syndrome.?

Accepted Answer

Syndromes: Von Hippel-Lindau syndrome is a genetic disorder that leads to the developement of many different types of tumors. Lennox Gastaut syndrome is a disorder in which the victim has many seizures.  Both are severe, and a person with either one should have a doctor familiar with its treatment

Question 9

help docs! i'm trying to find out what causes von hippel lindau disease?

Accepted Answer

See doctor: Von hippel lindau disease involve s genetic mutation of VHL gene , involves multiple organs as tumors of  brain kidneys eyes and glands affecting blood vessels ---called hemangiomas .One may get headache,problem in balancing ,walking ,dizziness and blindness depending upon the size of hemangioma .Better discuss with  your doctor if you have any symptoms .

Question 10

i have just been told i have von hippel-lindau disease. where can i learn more?

Accepted Answer

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life.

Get Virtual Care

For Businesses

About Us

HealthTap Online Primary Care Doctors Accepting New Patients

Doctor answers about:

Von hippel lindau disease medication

A member asked:

How common is von hippel-lindau disease?

A member asked:

What are the tests for von hippel-lindau disease?

A member asked:

How common is von hippel-lindau disease in people?

A member asked:

What can i do to find out if i have von hippel lindau disease?

A member asked:

What is the definition or description of: von hippel lindau disease?

A member asked:

What are the common presenting symptoms of von hippel-lindau disease?

A member asked:

I have just been told i have von hippel-lindau disease. what? why? how did i get it?

A member asked:

What are von hippel - lindau disease and lennox/gastaut syndrome.?

A member asked:

Help docs! i'm trying to find out what causes von hippel lindau disease?

A member asked:

I have just been told i have von hippel-lindau disease. where can i learn more?

HealthTap Online Primary Care Doctors Accepting New Patients

Telemedicine

Primary Care

Manage Your Conditions

Women's Health

Children's Health

Men's Health

Senior Health

Wellness, Prevention & Lifestyle

Sexual Health

Mental & Behavioral Health

Travel Medicine

Urgent Care

Didn't find what you're looking for?

More of what we treat

Allergies

Antibiotics

Asthma

High Blood Pressure

Prescriptions

Type 2 Diabetes

For Businesses

Company

Health Content

Join Us

Download HealthTap

Questions?